RT Journal Article
SR Electronic
T1 Adolescents with severe chronic fatigue syndrome can make a full recovery
JF BMJ Case Reports
FD BMJ Publishing Group Ltd
SP bcr0120113716
DO 10.1136/bcr.01.2011.3716
VO 2011
A1 Mary Burgess
A1 Trudie Chalder
YR 2011
UL http://casereports.bmj.com/content/2011/bcr.01.2011.3716.abstract
AB The needs of children and adolescents severely affected by chronic fatigue syndrome, myalgic encephalomyelitis (CFS/ME) are currently inadequately addressed in the UK. Sadly, there are few specialists addressing the needs of these patients who are primarily bed-bound, wheelchair users or who can only leave home on an infrequent basis. Uncertainty about what to offer as well of a lack of funding may play a part. Action for Young people with ME (AYME) suggests that at least 350 severely affected children/adolescents are receiving little or inadequate care to help them overcome this debilitating illness. This case report illustrates how recovery can occur with pragmatic rehabilitation combined with a committed compassionate family based approach.