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Prolonged unassisted survival in an infant with anencephaly
  1. Holly Dickman1,
  2. Kyle Fletke2,
  3. Roberta E Redfern3
  1. 1Sylvan Lakes Family Physicians, Sylvania, Ohio, USA
  2. 2Moses Cone Health System, Cone Health Family Medicine Center, Greensboro, North Carolina, USA
  3. 3ProMedica Toledo Hospital, Toledo, USA
  1. Correspondence to Dr Holly Dickman, hollydickman{at}


Anencephaly is one of the most lethal congenital defects. This case report is of an anencephalic infant who lived to 28 months of life and defies current literature. She is the longest surviving anencephalic infant who did not require life-sustaining interventions. This case presents the obstacles that arose from this infant's prolonged life and recommendations based on these findings.

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  • Contributors HD was responsible for conception, data acquisition, interpretation, drafting the manuscript and revising for critically important information. KF was responsible for data acquisition, interpretation and revising the manuscript for critically important information. RER was responsible for design, drafting the manuscript, and revising for critically important information. All authors approved of the final version to be submitted and agree to be accountable for all aspects of the work.

  • Competing interests None declared.

  • Patient consent Obtained.

  • Provenance and peer review Not commissioned; externally peer reviewed.